A family from this province, now living in Alberta, has put out an online plea for help after their son was diagnosed with a very rare and serious disease.

According to information posted to their GoFundMe page, Aaron and Heather Stacey knew something wasn’t right with their son Madden when he had a seizure about a year ago.

After close to a year of testing, Madden was diagnosed with Neuronal Ceroid Lipofuscinosis (NCL), more commonly known as Batten Disease, a term for a number of rare diseases which attack the nervous system.

According to Stacey, there is no cure for the disease and most children with it do not live beyond the age of 12.

The family is currently looking at treatment options, including an enzyme replacement therapy called Brineura which is said to help slow down the progression of the disease.

While Madden undergoes treatment, the family is seeking financial aid to help them through the process.